Rare Disease Day– February 28, 2022

This February 28 is Rare Disease Day. With numerous things going on in the world around us, it’s really easy to delay essential things like health. That’s why the last day of February each year we mark our calendars to bring awareness to rare illness. Approximately 1 in 20 individuals deal with a rare disease at least once in their life time, few of which see any indication of a cure. The objective of Rare Disease Day is to enhance understanding among the public of rare diseases while motivating researchers and choice makers to resolve the requirements of those living with rare illness.

HISTORY OF RARE DISEASE DAY
Founded by the European Company for Rare Diseases, the very first Rare Disease Day was commemorated in 2008 on February 29. A “rare” date that happens just once every four years. Ever since, Rare Disease Day has happened on the last day of February, a month understood for having a rare variety of days. The day is held to raise awareness for rare diseases and improve access to treatment and medical representation for people with rare diseases and their families. Treatment for lots of rare illness is insufficient, as are the social media networks to support individuals with rare diseases and their families.

Individuals observing Rare Disease Day take part in strolls and interview, organize fundraisers, compose en masse to government agents, together with holding events, events, and projects. The day likewise includes an open session of the European Parliament specifically dedicated to discussing policy issues connecting to rare diseases. The days leading up to Rare Disease Day include other policy-related events in various locations, such as a reception in the British Parliament where policy makers meet with individuals with rare diseases to discuss concerns such as equal access and schedule of avoidance, medical diagnosis, treatment and rehabilitation.

Each year because its start there have been thousands of occasions coming from races and strolls to art exhibits and workshops. These events are held to accentuate policy makers and inspire modification in the neighborhood. Historic monoliths such as the Colosseum and the Empire State structure have actually taken steps in sending messages of solidarity on this day by lighting up with the renowned pink, blue, and green colors, offering wish for millions global.

RARE DISEASE DAY TIMELINE
1796
The First Vaccine
Edward Jenner, a nation medical professional living in England, performed the world’s first vaccination conserving potentially countless individuals from smallpox.

1885
The First Rabies Vaccine
Nine-year-old Joseph Meister, who had been mauled by a rabid canine, was the first human to receive this vaccine.

1983
The Orphan Drug Act
The Orphan Drug Act was passed to help with advancement of drugs for rare diseases.

2008
The First Rare Disease Day
Happening on the 25th anniversary of the death of the Orphan Drug Act, the extremely first Rare Disease Day is observed in numerous European and Canadian countries.

2012
PREPARATION
The U.S. Fda (FDA) approved Truvada for PrEP use to prevent the spread of HIV.

RARE DISEASE DAY FREQUENTLY ASKED QUESTIONS
What is a rare disease?
A disease defined as rare is when it affects less than 1 in 2,000 people. Nevertheless, there are over 300 million people dealing with one or more of over 6,000 determined rare illness worldwide.

What color is rare disease day?
While the colors most utilized for Rare Disease Day are pink, blue, and green, in your area used symbols may differ.

What is a disease?
A disease is disorder of structure or function in a human, animal, or plant that is not a direct result of physical injury.

RARE DISEASE DAY ACTIVITIES
Spread the word
Share posts about Rare Disease Day on social networks and inspire buddies to raise awareness for rare illness.

Volunteer
Every year, countless occasions are organised all over the world throughout the month of February to mark the celebration of Rare Disease Day. Patient organizations, healthcare experts, scientists, policymakers and other members of the rare disease community organize Rare Disease Day occasions. Discover occasions near you, or go to the site and begin your own!

Inform Your Story
Belong to Rare Disease Day by sharing your story with others and sending out a message of solidarity! You can blog about your story and also send images or a video testimonial to rarediseaseday.org
5 FACTS ABOUT RARE DISEASES
1 in 10
1 in 10 individuals struggle with rare diseases in the U.S

. It largely impacts children
50% of those affected by rare illness are kids

Worldwide Scale
Rare illness affect over 300 million individuals worldwide

Discovering Assistance
Half of rare illness impacting individuals do not have a foundation or research study support group

The big number
95% of rare diseases lack an FDA approved treatment.

WHY WE LOVE RARE DISEASE DAY
Raising awareness
Rare Disease Day improves knowledge amongst the public of rare diseases while encouraging researchers and choice makers to resolve the requirements of those living with rare illness.

Discovering treatments
The majority of rare diseases have no discovered treatment and lots of go undiagnosed, by bringing awareness we open up minds and hearts to the possibility of discovering a remedy.

Conserving lives
Considerable advances in rare disease policy can be seen on a global scale throughout the years and has assisted enhance the lifestyle for many worldwide.

 

Calendar date of the event Rare Disease Day every year? Calendar Rare Disease Day from now to 2030 is the date?

When is...?	Date	Day of Week	Days away
Rare Disease Day 2023	Day 28 Month 2 Year 2023	Tuesday	Happen in 0 days
Rare Disease Day 2024	Day 28 Month 2 Year 2024	Wednesday	Happen in 0 days
Rare Disease Day 2025	Day 28 Month 2 Year 2025	Friday	Happen in 310 days
Rare Disease Day 2026	Day 28 Month 2 Year 2026	Saturday	Happen in 675 days
Rare Disease Day 2027	Day 28 Month 2 Year 2027	Sunday	Happen in 1040 days
Rare Disease Day 2028	Day 28 Month 2 Year 2028	Monday	Happen in 1405 days
Rare Disease Day 2029	Day 28 Month 2 Year 2029	Wednesday	Happen in 1771 days
Rare Disease Day 2030	Day 28 Month 2 Year 2030	Thursday	Happen in 2136 days